09/23/2026
I was really hoping to join the Lupus Walk-a-Thon on October 4 at Nomahegan Park, but unfortunately, I’m sitting this one out. 💜
I’ve been dealing with chronic inflammation in my right foot for about a year, and naturally, the only appointment I could get for an injection is October 2. I think the Universe is conspiring.
And while we’re on the glamorous subject of my body falling apart, my right index finger has also been busted for years, and I’m still recovering from other medical adventures. Apparently, my body prefers the deluxe recovery package.
That’s the reality of lupus sometimes. It isn’t always one huge dramatic crisis. It’s a foot. A finger. A joint. My eyes. Fatigue. Pain. Procedures. Recovery. Then, just when one thing settles down, another body part decides it would like to be the star of the season.
I’m open about what I go through because I believe sharing these experiences is part of raising awareness. So much of lupus is invisible, and if talking honestly about it helps someone understand the disease a little better, I’ll keep talking.
And just to be clear, I’m not fundraising for myself. I’m raising money to support lupus research, education, advocacy, patient support, and the people who will unfortunately have to navigate this disease after me.
Although, if anyone wants to volunteer to pay my roughly $1,000/month infusion bill after insurance...DM ME.
Jokes aside, I may not physically walk on October 4, but I’m still very much part of this walk.
Even $5 or $10 helps. Whatever rocks your boat. 💜 And if donating isn’t possible, sharing this post means just as much.
Special shoutout to Ellen Anje for making the very first donation and officially getting this fundraising train out of the station! 🚂💜
Donate: http://support.lupus.org/goto/stellachang
A Thousand Faces painting yeah thats what lupus is known for.
Watercolor on 30” H x 60” Yupo paper