19/11/2024
Noah passed away peacefully at home yesterday evening on his 19th birthday knowing he was dearly loved. With his mummy and daddy holding him and telling him that they loved him.
Noah is leaving a gap as wide as the grand canyon in our lives. Not only our lives but so many other peoples hearts have been touched by our Amazing Noah in his short life.
We are so honoured to have been chosen to be Noah’s parents he didn’t know it but we have been moulded by him into the people and parents we are today.
The last 5 years haven’t been easy and I will re share posts after this post of our journey.
Noah overcame leukaemia twice having two strokes (one massive one) relearning to move again.
He relapsed for the second time in Jan 23 being fortunate to have been put forward for CAR T which had its own risks. We really did think that he had beaten it but leukaemia is a wicked cancer and destroys whatever is in its path. As i’ve said before we are so grateful for the extra time we had with him but we wanted more.
Not once during this journey have our other boys moaned or complained our attention was always on Noah despite them being taken out of school before covid hit and then them not going back after all their friends had. Not being able to go on play dates for fear of bringing back infections to Noah. Having the flu jab every year and covid jab when it was available to protect their brother. Looking after their brother by popping in and reminding him to drink his water. Never going on family trips or holidays for the last 5 years. We are so proud of the young men (Fin and Kai) and little boy (Theo) have become.
All of them including Noah were looking forward to the arrival of their little brother who is due in December. This little miracle has obviously been sent for a reason which we didn’t know at the time but will take the middle name of his brave amazing brother Noah.
We have been asked over and over again how people can help and a really good friend Julie King who helped guide us when Noah was born and took us to the little meet ups for the local Down Syndrome groups. Set up a funding page to make memories with Noah a few days ago. We would like to use this money to make memories with our other boys in memory of Noah and help send Noah on his final journey.
All I can say is thank you all so very much for your pouring of heartfelt love for our boy.
If everyone can be a bit more like our amazing Noah the world would be a better place.
Iʼm raising money to MAKE PRECIOUS MEMORIES FOR A BEAUTIFUL FAMILY . Support this JustGiving Crowdfunding Page.
