08/08/2026
Please please please sign and share, We NEED your help. We need to try and access medication to help slow down the progression of Friedreichs Ataxia, a rare and heartbreaking condition that Brogan has been diagnosed with which has no cure….
There are billions of people in this world and some how, we can’t reach 10000 signatures! Please if you haven’t signed this petition, it would mean so much to us. It’s 2 minutes of your time to just sign and share.
The link is below
Petition: Fund NHS access to Omaveloxolone for patients with Friedreich’s Ataxia
We call on the Government to fund NHS access to Omaveloxolone in the UK. We believe the drug should also be considered under the HST programme, which we feel is the only appraisal route which reflects the realities of Friedreich’s Ataxia. This is a degenerative disease & time is of the essence.
https://petition.parliament.uk/petitions/760461
