22/08/2026
MAKE SKYCLARYS AVAILABLE IN IRELAND 🇮🇪
This is a little different from what we normally share on our business page, but for us, this couldn’t be more personal.
Barry is not only a co-owner of this company. He is a father, a brother, an uncle, a son and a friend.
Barry lives with Friedreich’s ataxia, a rare, progressive and devastating disease. Like so many others living with Friedreich’s ataxia in Ireland, he is waiting and hoping for access to Skyclarys.
Tomorrow, Sunday 23rd August, we are walking to ask the Government to make Skyclarys available in Ireland.
📍 Garden of Remembrance, Dublin
🕛 12 noon
➡️ Walking to The Custom House
We know there are so many worthy causes and so many people asking for support. But this one is incredibly close to home for us.
We need your help. We need your support.
Please show up if you can. Share this post. Spread the word. Help us make sure the voices of Barry and everyone living with Friedreich’s ataxia in Ireland are heard before this decision is made.
For Barry, and for every family living with this disease, please do what you can. ❤️
RareDiseaseIreland