Crafty Chick's Corner

Crafty Chick's Corner Hi, my name is Samantha and I am a mama and a crafter! It makes my heart happy to share my love of p

A little update on my little helper,  we have a foundation answer that brings so many more questions but I am super grat...
11/14/2021

A little update on my little helper, we have a foundation answer that brings so many more questions but I am super grateful for those of you who have continued to order in the absence of classes and sharing inspiration. I am hoping 2022 will bring back all the fun and stress relief that creating brings😘

I know it has been awhile but this mama is a perfectionist and my heart has been heavy. I feel like I have lied to everyone but really I feel like I have been lied to. Neither is reality, we get new answers the deeper we dig and I will never stop digging to find ways to help Cassie live a productive, happy and as healthy as she can be, life. A LOT of her current diagnoses are likely wrong, all of them are likely linked to the geneticist's findings. Cassie has an extremely called . There are about 100 cases WORLDWIDE known at this time and NONE with her exact deletion according to the foundation and that processed her test. This caused her brain to not form properly. She didn't inherit it from us it is her and her alone. seems to be a wide spectrum of severity and we are lucky Cassie is on the milder side. She will be getting more detailed tests including a better MRI but no matter the findings there is no treatment other than treating each individual symptom including

Good morning,  if you have requested one or ordered from me recently, catalogs are on the way! Our journey with Cassie h...
08/09/2021

Good morning, if you have requested one or ordered from me recently, catalogs are on the way! Our journey with Cassie has gotten very complicated in the last month so to keep some separation in life I decided to create a page for her. If you want to keep up to date with everything follow along! Miss you all!

Things have moved really fast this week. We are so grateful for our growing team of specialists. Friday we found out cassie's peabody standardized test showed that she has been stagnant in her development for almost a year. This was one of those things that we knew but seeing it in writing was hard. The last 4 months we have seen her regress in potty training and eating etiquette as well as her behavior. It has been hard as parents because you know she can do something but won't. The good thing this test did was show neuro where we were. They contacted the pediatric metabolic geneticist and explained the urgency of us being seen before September. We now will get seen on August 17th. Then yesterday we received Dr Shah's full report from Cincinnati Children's. He concluded that Cassie has moderate hypometabolism of the cerebellum that is causing most of her balance, coordination, vision and ataxic cerebral palsy. This reinforced her neurologist's suspicion that we are dealing with a rare in-born error of metabolism. In short cassie's body is not feeding her brain enough to create the energy it needs to function properly and her brain is slowly starving to death.
If both of her specialists are right it would mean her epilepsy, vestibular nystagmus, mild ataxic cerebral palsy are all symptoms of her brain's metabolic disorder.
I think we are headed in the right direction but it is so terrifying. We are hoping that we can move quickly with testing from geneticist before she starts regressing in her cognitive and speech functions as well.

I am sure many of you have seen that the holiday catalog launched on Tuesday and with it a new Sale-a-bration! Here is a...
08/07/2021

I am sure many of you have seen that the holiday catalog launched on Tuesday and with it a new Sale-a-bration! Here is a host code: YUDZMETB
if you would like to continue supporting me while we figure out life over here. Also through tomorrow ONLY in Ohio is tax free weekend. Select items qualify including adhesive, scissors and more. Reach out if you need help, catalogs or miss me🤣
https://craftychickscorner.stampinup.net

Use this digital brochure to quickly and easily share Sale-A-Bration information with your customer.

Today ONLY! Less than 18 hours left,  free standard shipping on orders over $50 before tax! Use host code and receive a ...
06/24/2021

Today ONLY! Less than 18 hours left, free standard shipping on orders over $50 before tax! Use host code and receive a special gift from me as a thank you😘
https://stampinup.com?demoid=2219419
Host code: YUDZMETB

Tomorrow ONLY! 24 hours,  free standard shipping on orders over $50 before tax! Use host code and receive a special gift...
06/23/2021

Tomorrow ONLY! 24 hours, free standard shipping on orders over $50 before tax! Use host code and receive a special gift from me as a thank you😘
https://stampinup.com?demoid=2219419
Host code: YUDZMETB

Placing an order Friday if you are local and want to save a little on shipping or ship direct to your house and use host...
04/28/2021

Placing an order Friday if you are local and want to save a little on shipping or ship direct to your house and use host code: UNCFM2BX
https://Craftychickscorner.stampinup.net

As a Stampin’ Up! demonstrator, I teach others how to be creative using high quality stamps, ink, and paper, as well as embellishments, specialized tools, beautiful project kits, and more. I help you take the guesswork out of coordination so you can have an amazing crafting experience, no matter y...

04/27/2021

A little inspiration 😍

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2551 Maplehurst Drive
Stow, OH
44224

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